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Changes between Version 1 and Version 2 of Ticket #6330

Timestamp:: 07/26/11 09:34:06 (13 years ago)
Author:: adjudson
Comment:

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Ticket #6330 – Description

-                      v1
+                      v2
 Each of the clinical data files we've provided from the GoDARTS project represents a dataset. For instance the separate files for SMR, RX (prescribing), BIOCHEM, etc are all separate datasets. I think the only way we can work this in terms of the pilot project governance is to use the GoDARTS data as the real data and create a mass of fake data based on the schemas. These would then form the dataset silo, from which we can rebuild the project silo and test that users only get to work with the project data they are supposed to.
 The audit trail should allow dataset inspection e.g. which project have used smr... In theory a data owner (the custodians, patients or caldicotts) may want to see how safe our model is or who is using 'their' data.
+There are various reasons why this is useful - simplify/automate data flows, governance and audit, end user aggregate queries (e.g. study estimates). But of particular interest is the governance and the following 2 use cases:
+Another feature that the steering group are interested in exploring through this is the embedding of risk prediction models, privacy impact assessments and disclosure controls. These are mechanisms that are being discussed in the SHIP blueprint as ways to facilitate risk based & proportionate data governance. Once the next blueprint draft/final copy is available I'll update this story.
+. The audit trail should allow dataset inspection e.g. which project have used smr... In theory a data owner (the custodians, patients or caldicotts) may want to see how safe our model is or who is using 'their' data.
+. The embedding of risk prediction models, privacy impact assessments and disclosure controls. These are mechanisms that are being discussed in the SHIP blueprint as ways to facilitate risk based & proportionate data governance. Once the next blueprint draft/final copy is available I'll update this story.